It took 21 years from onset of symptoms until I was diagnosed. This is only slightly longer than the average of 10-20 years for most people to receive an EDS diagnosis.
This battle with blastomycosis that Carson is facing has been hard to process, really. Aside from the very serious medical aspect of this, is the fact that just a week after we sent Carson off on this new chapter in his life, he got sick. He still feels like one of our own, but he’s now a part of you. So, naturally we asked the question, “How would this big church respond?”
Dr. Jacobson, you are in a unique position to speak into the lives of women. How will you use your voice? Will you use it to feed into negative self-talk and negative body image? Or, will you use it to inspire women to see themselves in the best possible light through positive affirmation and realistic body images?
I would have a (nighttime) dream where I was driving in a car on a busy highway. Usually, I was lost, or unsure of the way....There would always be a feeling that I was out of control. That at any moment the car I was driving would go off the road, or the cars around would hit me, or I would miss an exit or the highway would end.
Every now and then I catch a glimmer of my impact in this world. Like the sparkler I light every 4th of July; my little light shines bright, sends sparks all over the place, but quickly fizzles out as I try to prevent it from burning my hand. Then, I'm left to stare at my neighbor's fireworks and wonder why I even bothered to light my sparkler in the first place.